Table of Contents
Diagnosis
- Your Child's Diagnosis
- Handling the Shock of Diagnosis
- Steps to take after your child has been diagnosed
- Questions and More Questions
- Question Log
- Diagnosis Tracking Record
- Words of Inspiration
Teaming with Others
- Teaming with Others (Managing the hospital and clinic environment)
- Care Coordination
Child Growth and Development
- Child Growth and Development Record
- Birth History
- Feeding History
- Dental History
- Tip Sheet #1: Parent to Parent
Advocacy
- Learning Assertiveness and Advocacy
- Resources on Assertive Advocacy
You're Not Alone
- You're Not Alone
- Picture Page
- Coping With Loss
- Welcome to Holland
- Tip Sheet #2: How to manage one or more appointments in the same day
- Tip Sheet #3: What to do if your child is hospitalized
Going Home
- Tip Sheet #4: Going Home!
- Insurance Information
- Tip Sheet #5: Your Child's Medication
- Therapy Tracking Guide
- Tip Sheet #6: Emergency Planning Guidelines
- Tip Sheet #7: For use of your child's Health Profile
- How Special I Am!
- Child's Illness/Infection/Injury Record
- Medications
- Immunization and Allergy Record
- Health Profile
- Hospitalization Tracking Record
Emergency Planning
- Important Telephone Numbers
- Other Important Phone Number
- Emergency Medical Services Form
- Emergency Care Plans for Children with Special Health Care Needs
- Emergency Information Form for Children with Special Needs
Care Plan
- To be provided by your Care Coordinator
Calendar
Resources
- Resource for Formula
- Parent Resources Information & Referral Resources
- Other Resources
- Continuity of Care Program Waiver Information
- Summary of Waiver Services
- Medicaid Benefits
- Medical Transportation Claim
Parent Dictionary - Appendix A
State and National Resources- Appendix B
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