ALABAMA

University of Alabama at Birmingham
Laboratory of Medical Genetics Presymptomatic
Huntington's disease Testing Center
908 South 20th Street, Rm. 323
Birmingham, AL 35294-0011
Contact: Judy Franklin, RN, MSN
Phone: (205) 934-4983 Fax: (205) 975-6389

ARIZONA

Edwards Medical Plaza
1300 North 12th Street, Suite 403
Phoenix, AZ 85006
Contact: Sarah Richter-Cox, MS
Pamela Nutting, MS
Phone: (602) 239-4561
Fax: (602) 239-2207

Arizona Health Sciences Center
Section of Medical and Molecular Genetics
1501 N. Campbell Avenue, Room 3335
Tucson, AZ 85724
Contact: Lynn Hauck, MS
Phone: (520) 626-5175
Fax: (520) 626-8056

CALIFORNIA

UCLA Medical Center Neurogenetics Clinic
10833 Leconte Avenue, MDCC 22-499
Los Angeles, CA 90024
Contact: Michelle Fox, MS
Phone: (310) 206-6581
Fax: (310) 206-8616

University of California, San Francisco
Genetic Counseling Clinic
533 Parnassus Avenue
Room U-100-A
San Francisco, CA 94143
Contact: Andrea Zanko, MS
Phone: (415) 476-9320
Fax: (415) 476-9305

Kaiser Permanente of Southern California Department of Medical Genetics
13562 Cantara Street
Panorama City, CA 91402-5497
Contact: Harold Bass, MD
Phone: (818) 375-2073
Fax: (818) 375-3108
(Services for Kaiser members only)

Kaiser Permanente Hospital
Kaiser Hospital
260 International Circle
San Jose, CA 951194197
Contact: Annette Yen Batty, MS,
Julie Lundberg, MS
Phone: (408) 972-3300
Fax: (408) 972-3298
(Northern CA only)

VA Medical Center - 116B
3350 LaJolla Village Drive
San Diego, CA 92161
Contact: Dawn Stoll-Femandes, MS
Phone: (800) 827-1008
Fax: (619) 268-7816

University of California, Davis
2315 Stockton Boulevard, Room 5308
Sacramento, CA 95817
Contact: Dr. Vicky Wheelock
Phone: (916) 734-3588 xl893
Fax: (916) 452-2739

Valley Children's Hospital
Medical Genetics/Prenatal Detection
3151 North Millbrook
Fresno, CA 93703
Contact: Jamie Fisher, MS
Phone: (209) 243-6631
Fax: (209) 225-9022

COLORADO

University of Colorado
Huntington's Disease Testing Program
4200 East Ninth Avenue, Box 183
Denver, CO 80262
Contact: Christi Markey
Phone: (303)315-3601
Fax: (303)315-7583
Jena Kelly, LCSW
Phone: (303) 321-5503

Kaiser Permamente Department of Perinatology/Genetics
2045 Franklin Street
Denver, CO 80205
Contact: Carol Haverkamp, RN
Phone: (303) 861-3538
(Services for Kaiser members only)

CONNECTICUT

Yale University School of Medicine
Department of Genetics
333 Cedar Avenue, PO Box 208005
New Haven, CT 06520
Contact: Miriam DiMaio, MSW
Phone: (203) 785-2661
Fax: (203) 785-7673

The School of Medicine
University of Connecticut Health Center
Hartford Hospital
Conklin Building, Suite 401
80 Seymour Street
Hartford, CT 06102
Contact: Alice Iacobucci
Phone: (860) 545-2637

FLORIDA

University of Florida
Division of Pediatric Genetics
PO Box 100296
UFHSC
Gainesville, FL 32610
Contact: Heather Stalker, MSC, CGC
Kory Keller, MS
Phone: (352) 392-4104
Fax: (352) 392-3051

University of South Florida
Regional Genetics Program
10770 North 46th Street
Suite C 900
Tampa, FL 33617-3451
Contact: Pat Newkirk, MS
Phone: (813) 975-6900
Fax: (813) 975-6615
* (Services state of Florida only)
* Prenatal testing

University of Miami
Department of Neurology
1501 Northwest 9th Avenue
Miami, FL 33136
Contact: Dinorah Bateman, RN
Phone: (305) 243-6200
Fax: (305) 243-3828

GEORGIA

Emory University
Neurobehavior Program
Wesley Woods Center
1841 Clifton Road, N.E.
Atlanta, GA 30329
Contact: Dr. Randi Jones
Phone: (404) 728-6849
Fax: (404) 728-6685

HAWAII

Kapi'olani Medical Center
Genetics Department
1319 Punahou Street, #540
Honolulu, HI 96826
Contact: Tammy Stumbaugh, MS
Phone: (808) 983- 8559
Fax: (808) 983-6081

Kaiser Permanente Medical Group
1010 Pensacola Street
Honolulu, HI 96814
Contact: Dwight K.C. Yim, MD
Phone: (808) 597-2481
Fax: (808) 597-2498

ILLINOIS

Rush-Presbyterian-St. Luke's Medical Center
1653 West Congress Parkway
Chicago, IL 60612
Contact: Dr. Kathleen Shannon
Phone: (312) 942-4500
Fax: (312)942-2380

Advocate Medical Group
Lutheran General Perinatal Center
Parkside Center
1875 Dempster Street, Suite 340
Park Ridge, IL 60068
Contact: Scott Polzin, MS, CGC
Phone: (847) 723-7705
Fax: (847) 723-2290

INDIANA

Indiana University Medical Center
Qepartment of Medical and Molecular Gene
Medical Research and Library Building
RM IB-130
975 W. Walnut Street
Indianapolis, IN 46202-5251
(contact: Kimberly Quaid, PhD
Phone: (317) 274-2241
Fax: (317) 274-2387

IOWA

University of Iowa
Regional Genetic Consultation Service
200 Hawkins Drive-2604 JCP
Iowa City, IA 52242-1083
Contact: Catherine Evers, RN, MA
Phone: (319)356-1160
Fax: (319)356-3347

KANSAS

University of Kansas Medical Center
3901 Rainbow Boulevard
Kansas City, KS 66160-7314
Contact: Carolyn S. Gray, RN
Phone: (913) 588-6983
Fax: (913) 588-6965

Hereditary Neurological Disease Center
654 North Woodchuck
Wichita, KS 67212-3555
Contact: Gregory Suter
Phone: (888) 232-4632 or
(316) 721-9250
Fax: (316) 722-2710

MARYLAND

Johns Hopkins School of Medicine
Meyer, Room 2-181
600 North Wolfe Street
Baltimore, MD 21287-7281
Contact: Deborah Pollard
Phone: (410) 955-2398
Fax: (410) 955-8233

MASSACHUSETTS

Boston University School of Medicine
Neurogenetics Laboratory
Department of Neurology
Boston, MA 02118
Contact: Dr. Richard H. Myers
Phone: (617) 638-5393
Fax: (617) 638-8076

MICHIGAN

University of Michigan
Molecular Medicine and Genetics Clinic
4301 MSRB III, Box 0638
Ann Arbor, MI 48109-0638
Contact: Wendy Uhlmann, MS
Phone: (734) 763-2532
Fax: (734) 763-7672

Butterworth Genetic Services
21 Michigan NE #465
Grand Rapids, MI 49503
Contact: Kathleen Delp, MSW
Phone: (616) 391-8664
Fax: (616)391-3114

Wayne State University
School of Medicine
Department of Neurology
6E University Health Center
4201 St. Antoine
Detroit, MI 48201
Contact: Karen Krajewski, MS
James Garbern, MD, PhD
Phone: (313) 577-8317

MINNESOTA

Hennepin County Medical Center
Huntington's Disease Center
Dr. Martha Nance, Director
701 Park Avenue S.
Minneapolis, MN 55415
Contact: Carol Ludowese, MS
Phone: (612) 347-4686
Fax: (612) 904-4275

University of Minnesota
Medical School
Box 485 Mayo Building
420 Delaware Street Southeast
Minneapolis, MN 55455
Contact: Bonnie S. Leroy, MS
Vickie Mattias Hagen, MS
Phone: (612) 624-7193
Fax: (612) 624-6645

MISSOURI

University of Missouri Hospital
Division of Medical Genetics
Columbia, MO 65121
Contact: Karen Potter, MS
Phone: (573) 884-6735
Fax: (573) 884-3543

MONTANA

Shodair Hospital
Department of Genetics
840 Helena Avenue, PO Box 5539
Helena, MT 59604
Contact: Dr. John Johnson
Phone: (800) 447-6614
Fax: (406) 444-7536

NEW JERSEY

University of Medicine & Dentistry of NJ-SOM
Division of Human Genetics
Specialty Care Center, Suite 3800
Stratford, NJ 08084
Contact: Susan Betts, MSW
Phone: (609) 566-7078

Huntington's disease Family Service Center
Copsa Institute
667 Hoes Lane
Piscataway, NJ 08855-1392
Contact: Dr. Michael K. McCormack,
Donna Ross, LMSW
Phone: (732) 235-5730 or (732) 235-5992
Fax: (732) 235-4920

University of Medicine &. Dentistry of NJ
New Jersey Medical School
Doctors Office Center, Suite 5200
90 Bergen Street
Newark, NJ 07103
Contact: Donna Ross, LMSW
Phone: (732) 235-5992
Fax: (732) 235-4920

NEW MEXICO

University of New Mexico Medical Center
Division of Genetics
Albuquerque, NM 87131
Contact: Jo Cope, MA
Phone: (505) 272-6631

NEW YORK

Albany Medical Center
Department of Clinical Genetics, A-88
43 New Scotland Avenue
Albany, NY 12208-3478
Contact: Lenore Palladino, MS, RN
Phone: (518) 262-5120
Fax: (518) 262-5924

University of Rochester
Movement Disorders Unit
601 Eirnwood Avenue
Rochester, NY 14642-8673
Contact: Charlyne Hickey, RN, MS
Phone: (716) 275-1279
Fax: (716) 473-4678

State University of New York
Health Science Center
College of Medicine
Division of Genetics
750 East Adams Street
Syracuse, NY 13210
Contact: Laura L. Thomson, MS,
Bonnie R. Braddock, MPH
Phone: (315)464-7610
Fax: (315) 464-7564

Columbia Presbyterian Medical Center
Testing Center
Columbia University
Sergievsky Center, P.O. Box 16
630 West 168th Street
New York, NY 10032
Contact: Jennifer Williamson, MS
Phone: (212) 305-4655
Fax: (212) 305-2426

NORTH CAROLINA

University of North Carolina at Chapel Hill
Division of Genetics and Metabolism
CB#7487 UNC Campus
Chapel Hill, NC 27599-7487
Contact: Barbara Wedehase, CCSW
Phone: (919) 966-9568

OHIO

Genetics Center
Children's Hospital of Akron
I Perkins Square
Akron, OH 44308
Contact: Dr. John Waterson, MD,
Melone Michelson, MA,
Suzanne Woods, MS,
Connie Viotter, MS,
Joeleen Virton, MS
Phone: (330) 379-8792
Fax: (330) 258-3677

Children's Hospital
Regional Genetics Center
700 Children's Drive
Columbus, OH 43205
Contact: Sharon Linard, MS
Phone: (614) 722-3540
Fax: (614) 722-3546

Center for Human Genetics
University Hospitals of Cleveland
lllOOUclidAvenue
Cleveland, OH 44106
Contact: Arthur Zinn, MD, PhD
Phone: (216) 844-3936
Fax: (216) 844-7497

MetroHealth Medical Center
Genetics Department
2500 MetroHealth Drive
Cleveland, OH 44109-1998
Contact: Kelly Donahue, MS
Phone: (216) 778-4323
Fax: (216) 778-8840

Children's Hospital Medical Center
Human Genetics Division
3333 Bumet Avenue
Cincinnati, OH 45229
Contact: Karen Huelsman, MS
Phone: (513) 636-3871
Fax: (513) 636-7297

OKLAHOMA

H. Alien Chapman Res. Institute
Dr. Frederick Schaefer
5300 East Skelly Drive
Tulsa, OK 74135
Contact: Mary Floyd, MS
Phone: (918) 628-6363
Fax: (918) 664-0596

OREGON

Kaiser Foundation Health Plan of NW
10220 SE Sunnyside Road
Clackamas, OR 97015-9309
Contact: Laura Rivas, Cheryl Miranda,
Roberta Foxiey
Phone: (503) 571-5827
Fax: (503) 571-2772

Oregon Health Sciences University
CDRC Genetics
PO Box 574
Portland, OR 97207
Contact: Karen Kovak, MS
Phone: (503) 494-8307
Fax: (503) 494-2786

PENNSYLVANIA

University of Pittsburgh
Department of Human Genetics
GSPH - A 300 Crabtree Hall
130 DeSoto Street
Pittsburgh, PA 15261
Contact: Betsy Gettig, MS
Phone: (412) 624-9951
Fax: (412) 624-3020

Allegheny General Hospital
Department of Medical Genetics
11th Floor, South Tower
320 East North Avenue
Pittsburgh, PA 15212
Contact: Melissa K. Bourdius, MS
Phone: (412) 359-6388 or (800) 520-64
Fax: (412) 359-6488

VA Medical Center
7180 Highland Drive
Pittsburgh, PA 15206-1297
Contact: Carol Schramke, PhD
Phone: (412) 365-5195

Allegheny Hospital
(Psychiatry)
1427 Vine Street
Mail Stop 950
Philadelphia, PA 19102-1192
Contact: Melissa K. Bourdius, MS
Phone: (800) 520-6433 or
(412) 359-6388

Jefferson Medical College
Thomas Jefferson University
Division of Medical Genetics
1100 Walnut Street
Philadelphia, PA 19107-5563
Contact: Donna Goodwin, MS
Phone: (215) 955-5080
Fax: (215) 955-7560

University of Pennsylvania Medical Center
Clinical Research Building, Room 45 2A
415 Curie Blvd.
Philadelphia, PA 19104-6145
Contact: Lynn Godmilow, MSW
Phone: (215) 573-9161 or (800) 669-2172
Fax: (215) 573-7760

SOUTH CAROLINA

Psychiatric Genetic Services
1800 Colonial Drive PO Box 202
Columbia, SC 29202
Contact: Dr. Ruth Abramson
Phone: (803) 734-7154
Fax: (803)734-7116

TENNESSEE

University of Tennessee Medical Center
Developmental and Genetic Center
1924 Alcoa Highway Box 0102
Knoxville, TN 37920
Contact: Dr. Nicholas T. Potter
Phone: (423) 544-9030
Fax: (423) 544-6675

Vanderbilt University Medical Center
Division of Genetics
DD-2205 Medical Center North
Nashville, TN 37232-2578
Contact: Vickie Hannig, MS
Phone: (615) 322-7601
Fax: (615) 343-9951

TEXAS

Children's Medical Center of Dallas
Department of Genetics and Metabolism
1935 Motor Street
Dallas, TX 75235
Contact: Gail Brookshire, MS
Phone: (214) 640-2357
Fax: (214) 640-6233

Genetic Counseling Associates
14999 Preston Road, Ste 212-562
Dallas, TX 75240
Contact: Karen Heller, MS
Phone: (972) 458-8699
Fax: (972) 458-9060

Scott &. White Clinic
2401 South 31st Street
Temple, TX 76508
Contact: Rebecca Finkbohner, MS
Phone: (254) 724-0722
Fax: (254) 724-1425

Baylor College of Medicine
Medical Genetics Program
6550 Fannin, #921
Houston, TX 77030
Contact: Katie Leonard, MS
Phone: (713) 798-4363
Fax: (713) 798-4187

Southwest Genetics
7711 Louis Pasteur Drive
Oak Hills Medical Building
Suite 509
San Antonio, TX 78229
Contact: G.A. Mengden, PhD
Phone: (210) 615-8237
Fax: (210) 615-8239

UTAH

University of Utah Medical Center
Medical Genetics Program
413 MREB
50 North Medical Drive
Salt Lake City, UT 84112
Contact: Bonnie Jeanne Baty, MS
Phone: (801)581-8943
Fax: (801) 585-7252

VIRGINIA

University of Virginia Medical Center
Division of Medical Genetics
Box 386, Genetics
Charlottesville, VA 22908
Contact: Patricia S. Allinson, MS, CGC
Phone: (804) 924-2665
Fax: (804) 982-3850

WASHINGTON

University of Washington
Medical Genetics
1959 NE Pacific Street
Box 357720
Seattle, WA 98195-7720
Contact: Robin Bennett, MS
Phone: (206) 548-4030
Fax: (206) 616-4196

WEST VIRGINIA

West Virginia University
Department of Pediatric/Genetics
PO Box 9214
Morgantown, WV 26506-9214
Contact: Marybeth Hummel, MD
Phone: (304) 293-7332
Fax: (304) 293-4337

WISCONSIN

VA Hospital
Neurology Service
5000 West National Avenue
Milwaukee, Wl 53295
Contact: Dr. Norman Reynolds
Phone: (414) 384-2000 x 2950

Marshfield Clinic
1000 North Oak Avenue
Marshfield, Wl 54449
Contact: Mahala Eamhart, RN
Phone: (800) 782-8581 x 93133
Fax: (715) 387-5727

Disclaimer:The indications and dosages of this material have either been recommended in the medical literature or conform to the practices of physicians expert in the care of people with Huntington's disease. The indications do not necessarily have specific approval forth Food and Drug Administration (FDA) for the indications and dosages for which they are recommended. The package insert for each drug should be consulted for uses and dosage approved by the FDA. Because standards for dosage change, it is advisable to keep abreast of revised recommendations, particularly those concerning new drugs. Statements and opinions expressed in this book are not necessarily those of the Huntington's disease Society of America, Inc. nor does HDSA promote, endorse, or recommend any treatment or therapy mentioned herein. The lay reader should consult a physician or other appropriate health care professional concerning any advice, treatment or therapy set forth in this book.