Huntington's Disease Center: Department of Psychiatry: University of Iowa Health Care

Collaborative Research at
Iowa's HDSA Center of Excellence

About Us
The University of Iowa Huntington's disease (HD) Center of Excellence serves as a caring resource and research center for people and families affected by HD. Our mission is to provide expert care, advance HD research initiatives, and educate care providers and local communities.

Jane Paulsen, PhD and Robert Rodnitzky, MD lead Iowa's multidisciplinary team and help coordinate the diagnosis, treatment, and counseling of those affected by HD. Our center personnel also conducts research in an effort to better understand and treat the disease. Accordingly, our team approach provides a full range of services. A routine visit, for example, allows our staff to assess three primary areas affected by HD:

Motor Assessment: movement (chorea), posturing, rigidity, and balance are evaluated by a neurologist
Functional and Behavioral Assessment: current mood and level of day-to-day functioning is evaluated by a psychiatrist, psychologist or social worker
Cognitive Assessment: strengths and weaknesses in cognitive processes are evaluated by a neuropsychologist

Patients and their families are also assessed for additional health care needs such as speech therapy or genetic counseling. Additionally, the center serves as a resource for anyone needing HD information or wishing to volunteer in our research studies.

Submit Your Request
Concerning your research, we may be able to assist with participant recruitment. If you desire a collaborative effort with our recruitment and retention team, please answer the following questions regarding your research proposal. We will make every effort to help you and your colleagues with your recruitment and retention; however, we expect to remain the primary communication center for our participants.

Once this online form is completed, please click submit. Afterwards, please email Anne Leserman (anne-leserman@uiowa.edu) the Principal Investigator's CV. If possible, please include a CV for all additional staff serving on the project. We will review the proposal and, hopefully, begin working with you to contact our participants.

Demographic Information

Name of Study:

Principal Investigator(s):

Study Coordinator(s):

Study Coordinators Telephone:

Study Coordinators E-mail Address:

Sponsor/Funding Source(s):

Do you have IRB Approval?

If yes, please give us the approval date and number:
Date: IRB Number:

If no, when do you anticipate IRB approval?
Date:

Research Description
Please state your broad, long-term objectives and specific aims. Describe concisely the research design and methods.

Research Population
Describe your desired population by indicating: (1) your required sample size, (2) inclusion/exclusion criteria, and (3) your recruitment beginning and end dates. Additionally, please describe your methods for assuring participant confidentiality.

Compensation and Publication

Are funds available for recruitment and retention efforts?ÊÊPlease explain and, as you elaborate, include compensation details for our services:

Concerning this project, please list your publication policy and/or authorship rights:

Last modification date: Fri Dec 7 09:28:16 2007
URL: http://www.uihealthcare.com /depts/huntingtonsdisease/researchrecruiting.html

Collaborative Research at Iowa's HDSA Center of Excellence

Collaborative Research at
Iowa's HDSA Center of Excellence