Principal Investigator: Dr. Janet Williams

Study Description:  The Family Health project continues to recruit teen volunteers to complete a survey being conducted at the University of Iowa. Family members (ages 14-18) will be invited to complete one mailed survey that describes health and care-giving concerns for themselves and the person with HD.  Dr. Williams and her colleagues hope to better understand what health related issues family members manage from the time of receipt of predictive HD test results through the time of care-giving for the person with HD in the home, and in the nursing home or long term care facility. Teenagefamily members (ages 14-18) are eligible to participate.

Please contact: Joan Laing, HD Family project coordinator at joan-laing@uiowa.edu, 319-353-5414, or 305N Communication Center, The University of Iowa, Iowa City, IA 52242, to request a survey.