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Clinical Trials: Huntington's Disease
| Title: |
PHAROS (Pilot Huntington at Risk Observational Study) |
| Sponsor: |
Huntington Study Group |
| Principal Investigator: |
Ira Shoulson, MD |
| Local Investigators: |
Jane Paulsen, PhD, email: jane-paulsen@uiowa.edu
Robert Rodnitzky, MD |
| Coordinator: |
William Adams, B.A., email:Ê william-h-adams@uiowa.edu |
| Description: |
Three year observational study in North America (U.S. and
Canada) of people ages 30-54 who are at risk for
Huntington's Disease. Subjects will be seen in clinic for
evaluation of movement, psychological and behavioral
function every nine months for a period of three years. |
| Purpose: |
To determine the criticl period marking transition from
health to illness in individuals who carry the HD gene in
order to provide information for future experimental drug
trials for HD. |
| Status: |
Active since July 1999 |
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