Clinical Trials: Huntington's Disease
Title: |
PHAROS (Pilot Huntington at Risk Observational Study) |
Sponsor: |
Huntington Study Group |
Principal Investigator: |
Ira Shoulson, MD |
Local Investigators: |
Jane Paulsen, PhD, email: jane-paulsen@uiowa.edu |
Coordinator: |
William Adams, B.A., email:Ê william-h-adams@uiowa.edu |
Description: |
Three year observational study in North America (U.S. and Canada) of people ages 30-54 who are at risk for Huntington's Disease. Subjects will be seen in clinic for evaluation of movement, psychological and behavioral function every nine months for a period of three years. |
Purpose: |
To determine the criticl period marking transition from health to illness in individuals who carry the HD gene in order to provide information for future experimental drug trials for HD. |
Status: |
Active since July 1999 |