UI Department of Neurology

Clinical Trials: Huntington's Disease


Title:

PHAROS (Pilot Huntington at Risk Observational Study)

Sponsor:

Huntington Study Group

Principal Investigator:

Ira Shoulson, MD

Local Investigators:

Jane Paulsen, PhD, email: jane-paulsen@uiowa.edu
Robert Rodnitzky, MD

Coordinator:

William Adams, B.A., email:Ê william-h-adams@uiowa.edu

Description:

Three year observational study in North America (U.S. and Canada) of people ages 30-54 who are at risk for Huntington's Disease. Subjects will be seen in clinic for evaluation of movement, psychological and behavioral function every nine months for a period of three years.

Purpose:

To determine the criticl period marking transition from health to illness in individuals who carry the HD gene in order to provide information for future experimental drug trials for HD.

Status:

Active since July 1999

UI Department of Neurology :: 200 Hawkins Drive :: Iowa City, IA 52242 :: Phone: 319-384-8111 Fax: 319-384-7199 ::e-mail: neurology-scheduling@uiowa.edu