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PACEMAKER: Spring 2002

Life's lasting gift

Michael Sondergard

Des Moines man's stem cell donation saves life of 10-year-old Dubuque boy

The message was simple but poignant.

"To my donor, my hero. Love, Nick."

In those few precious words, inscribed on a plaque, 10-year-old Nicholas Lynn said "thank you" to Kyle Robertson, 33, for saving his life.

Nick and his parents, Bob and Leigh Ann Lynn of Dubuque, Iowa, presented the plaque to Robertson at an emotion-charged Celebrating Life Reunion sponsored by the Blood and Bone Marrow Transplant Program at University of Iowa Hospitals and Clinics.

Until the reunion, the Lynns had never met Robertson, although they had communicated anonymously through letters and small gifts.

Nick's journey began at age 4 when he was diagnosed with aplastic anemia, a devastating disorder in which the patient's marrow fails to produce blood cells. His only hope for survival was to find a marrow donor whose tissue type matched his own.

Robertson, administrator of Sports Medicine at Mercy Medical Center in Des Moines, signed up for the National Marrow Donor Program in December 1998.

"We had a blood and marrow drive and I just signed up," he said. "I really didn't think anything of it. About a year and a half later, I got a call saying I was one of three people whose tissue type might match a patient who needed a marrow transplant."

Robertson turned out to the best match, and donated bone marrow in November 2000; Nick received the transplant shortly thereafter. Unfortunately, three days before Christmas, Nick's body rejected the transplant, creating new anxieties for Nick and his family.

"We were concerned, sure," said Leigh Ann, who had been a bone marrow donor months before for a patient with chronic myelogenous leukemia. "But we never really doubted Nick would find a match. Nick was our strength through this ordeal. He has a real sense of humor. He was never really down and, because of him, neither were we."

Despite the first transplant's failure, Fred Goldman, M.D., director of the Pediatric Bone Marrow Transplant Program at UI Hospitals and Clinics, said Nick had another option. If Robertson were willing to donate a second time, Nick could undergo a second transplant. This transplant, like the first, also involved giving chemotherapy and radiation to destroy Nicks immune system and diseased marrow. However, the major difference was that instead of using bone marrow, peripheral blood stem cells would be obtained from Robertson using a special "pheresis machine".

Robertson happily agreed to the stem cell donation, which was performed January 3, 2001. When the transplant succeeded, everyone involved was thrilled.

"I'm overwhelmed," Leigh Ann said. "It's hard to put into words how I feel."

Robertson said he didn't feel like a hero. "I just felt it was the right thing to do," he said. "If I can help someone else out, I will."

Roger Gingrich, M.D., Ph.D., director of the Adult Blood and Bone Marrow Transplant Program and associate director for clinical affairs in the Holden Comprehensive Cancer Center, said the transplant team's goal is to give people back their normal lives.

"When patients come and stay with us for their transplants, we see them at their most vulnerable," he said. "At our reunion, we meet again in the arena of renewed life."

Physicians seeking consultation or referral to the blood and marrow transplant programs should call UI Consult and ask for Dr. Roger Gingrich (adult patients) or Dr. Fred Goldman (pediatric patients).


Bone marrow donation is rewarding, easy

Roger Gingrich, M.D., Ph.D., director of the Blood and Bone Marrow Transplant Program, said bone marrow donation is often mistakenly thought of as difficult and painful.

"It's a 30- 40-minute outpatient procedure that may cause mild discomfort but that's all," he said. "A donor is out of the hospital the same day, and usually back to work the next."

Anyone with questions about bone marrow or stem cell donation should call Colleen Chapleau, director of the Iowa Marrow Donor Program, toll-free at 1-800-944-8220, or call Chapleau directly at 319-356-3337.

Nicholas Lynn and Kyle Robertson

Nicholas Lynn and Kyle Robertson at the Celebrating Life Reunion. Both are fans of the Oakland Raiders football team.

Last modification date: Fri Dec 21 11:01:12 2007
URL: http://www.uihealthcare.com /news/pacemaker/2002/spring/bonemarrowdonation.html