Imagine not being able to eat a piece of toast for breakfast or go out for
pizza with your family. For people living with celiac disease, this is something
they face every day.
Celiac disease is an immunologic disorder in which people are allergic
to gluten, a protein found in wheat, rye and barley.
While some people are not allergic to gluten and can eat whatever grains
they want, some people are and gluten acts like poison ivy to the intestine.
In people with celiac disease, gluten sets off an immune reaction that
causes the destruction of the lining in the small intestine. People with
celiac disease often produce antibodies that can be detected by blood
tests.
According to David Elliott, M.D., associate professor and director of
the Celiac Clinic at the James A. Clifton Center for Digestive Diseases
at UI Hospitals and Clinics, nearly one in 200-250 people suffers from
celiac disease. The disease affects adults and children.
"Most often, the disease is diagnosed in children or adolescents,"
Elliott said. "However the disease can occur in adults and the elderly."
Symptoms of the disease include diarrhea, weight loss, abdominal pain,
chronic fatigue, weakness, malnutrition and other gastrointestinal problems.
The disease may affect other organs and systems in the body, such as the
bones, blood, the reproductive system and the nervous system.
Elliott noted that while he diagnoses patients with celiac disease, dieticians
are "the real miracle workers" in terms of managing the disease.
"The real trick to treating celiac disease is a good dietician,
because if a patient has bad teaching, they will be unsuccessful in their
treatment."
Beverlee Clearman, a dietitian in the UI Food and Nutrition Services
Department, said her job is providing primary diet instruction to patients
suffering from celiac disease.
"Really, Im the initial educator about their diet," Clearman
said. "I point out products that may contain gluten, show patients
how to read food labels, explain how to order when dining out, suggest
gluten-free recipes and provide information for contacting food manufacturers
about a certain ingredient."
Currently, there are no drugs to treat celiac disease and there is no
cure. By following a gluten-free diet, however, people with celiac disease
can live long, normal lives. Many health food and grocery stores have
gluten-free food sections that make it easier for those with the disease.
A celiac diet is also tax deductible, so those with the disease can eat
well without breaking their bank account.
"A celiacs diet can be very expensive, so we try to show patients
how they can make their own meals at home using gluten-free baking products,"
Clearman said.
For more information about celiac disease or support groups in your area,
call the UI Celiac Clinic at 319-356-4060.
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