The national Huntington's disease lay organizations offer a range of services and care programs to benefit people with Huntington's disease and their families, in addition, they operate research, education and advocacy programs, and are a useful source of information and referrals for both families and health care professionals.

Huntington's disease SOCIETY OF AMERICA
158 West 29th Street, 7th Floor
New York, NY 10001-5300
Phone: (212) 242-1968; (800) 345-HDSA
Fax: (212) 239-3430
E-mail:curehd@idt.net
http://www.hdsa.org

HUNTINGTON SOCIETY OF CANADA
13 Water Street North, Suite 3
PO Box 1269
Cambridge, Ontario NIR 7G6
CANADA
Phone: (519) 622-1002
Fax: (519) 622-7370
E-mail: info@hsc-ca.org
www.hsc-ca.org

For information on, or referral to, lay organizations in other countries, contact:

INTERNATIONAL HUNTINGTON ASSOCIATION
c/o Gerrit Dommerholt
Callunahof 8
7217 ST Harfsen
THE NETHERLANDS
Phone: 31-573-431595
Fax: 31-573-431595
E-mail: iha-huntington@tip.nl

Other Resources

ALLIANCE OF GENETIC SUPPORT GROUPS
35 Wisconsin Circle, Suite 440
Chevy Chase, MD 20815-7015
Phone: (800) 336-GENE or (301) 652-5553
E-mail: alliance@capaccess.org

HEREDITARY DISEASE FOUNDATION 1427 7th Street, Suite 2
Santa Monica, CA 90401
Phone:(310) 458-4183 Fax:(310) 458-3937
www.hdfoundation.org

NATIONALORGANIZATION FOR RARE DISORDERS
P. 0. Box 8923
New Fairfield, CT 06812
Phone: (203) 746-6518
www.nord-rdb.com/~orphan

WE MOVE
Worldwide Education and Awareness for Movement Disorders
One Gustave L. Levy Place, Box 1052
New York, NY 10029
Phone: (800) 437-MOV2 or (212) 241-8567
E-mail: wemove@wemove.org

Brain Tissue Banks

The greatest gift to research and future generations is the donation of the Huntington's disease patient's brain. For information on brain tissue donation, write or call:

Harvard Brain Tissue Resource Center
McLean Hospital
115 Mill Street
Belmont, MA 02178-9106
Phone: (800) 272-4622

National Neurological Research Bank
Dr. Wallace W. Tourtelotte, Director
West Los Angeles VA Medical Center
11301 Wilshire Blvd.
Los Angeles, CA 90073
Phone: (310) 268-3536

DNA Bank and Huntington's Disease Research Roster

The roster is a vital link between scientists and Huntington's disease families to facilitate research. All information is strictly confidential. The DNA Bank was established for the purpose of storing genetic material for possible future use. Cost to store a sample is $70.00. For information contact:

Dr. P. Michael Conneally
Indiana University Medical Center
975 West Walnut Street
Indianapolis, IN 46202
Huntington's Disease Roster: (317) 274-5744
E-mail: sfox@medgen.iupui.edu
DNA Bank: (317) 274-5745
E-mail: scraig@medgen.iupui.edu

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