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Nutrition
During the transplant process, it is important that your child gets
an adequate amount of calories, protein, vitamins, and minerals to help
the immune system grow and maintain strength. In order for us to keep
track of your child's nutrition, we will ask you to record everything
your child eats and drinks on the calorie count sheet taped to the outside
of the door. This will also allow us to watch the amount of fluid your
child takes in compared to the amount put out (urine, stool, vomit). If
your child is not receiving enough calories by eating, we will start central
venous nutrition (CVN) and lipids.
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Due to the amount of chemotherapy and radiation your child receives, he/she
may experience mouth sores, diarrhea (loose, runny stools), nausea and vomiting,
and loss of appetite. This is normal. You can try offering small, frequent meals
during the day rather than three large meals. Foods such as Bananas, Rice, Applesauce
and Toast (often referred to as the BRAT diet) are helpful if your child is
experiencing diarrhea, nausea and vomiting. For mouth sores, your child may
like liquids and foods that are easy to chew and swallow such as mashed potatoes,
noodles, soup and pudding. If your child has lots of diarrhea he/she may need
to be on a low-lactose (no milk products) or low-residue diet. Some foods that
are allowed are white bread, saltine crackers, oatmeal, eggs, meat and cream
soup. This type of diet leaves very little residue in the bowel (see diet appendix).
You will be able to fill out your child's menus each day for the next day's
meals. These need to be completed by 11:00 a.m. each day. Substitutions can
be written in on the menu from the additional food handout or from the next
day's cafeteria menu printout, which is located at the front desk.
Snacks are available three times a day. When snacks are ordered, they will
continue to come until they are cancelled. Please inform the unit clerk of changes
or cancellations you wish to make. To limit the number of people coming to your
room, we ask that Dietary leave all snacks in the kitchen area labeled with
the patient's name on it.
Parents may bring food in. It should be marked with the name and date placed
in the kitchenette. Avoid keeping any open food in patients' rooms. We have
someone periodically clean the refrigerator, but you can help by keeping your
food neat and labeled. All unnamed food is considered free for any patient and
any undated food is considered to be expired and will be thrown out.
Supplementary Nutrition
It is possible that by the time your child is discharged, their appetite
may not have returned to normal. Foods may still taste different and your child
might not be hungry. There are several options to provide nutrition. One is
central venous nutrition (CVN) and lipids. You can be taught to give these at
home. CVN is a combination of protein, carbohydrates, electrolytes, and vitamins
that infuse through the central line. Lipids provide necessary fats in IV form.
Another option is nasogastric (NG) tube
feedings. A plastic tube is inserted in the nostril and down into the stomach.
Tegaderm is then used to secure the tube to the child's face. These tubes are
not painful but can be uncomfortable until the child gets used to it. A formula
feeding is then given through the tube generally at night. Having formula in
the stomach will re-acquaint the stomach with food and hopefully your child
will then gradually start to eat (see NG procedure). The other option for providing
nourishment is to add high calorie snacks to what your child is already eating.
Some examples are milk shakes and Carnation(r) instant breakfast and Ensure.
Food Preparation
When you are preparing food for your child, you should:
- Make sure work area is clean.
- Rinse fresh fruits and vegetables.
- Cook meat thoroughly.
- Wash cutting boards between use.
- Wash can opener.
- Do not use dented cans.
- Do not leave leftovers in cans -- cover and refrigerate.
When your child's white blood cell count (WBC) is less than 1,000, he/she will
not be allowed to have any fresh vegetables or pepper. Fresh fruits that are
allowed are ones that have a thick peel such as oranges, watermelon or bananas.
Fruits and vegetables that have been cooked or are frozen or canned can be eaten.
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Intake and Output
We monitor how much fluid your child takes in and puts out very closely
while in the hospital. Some medications can cause your child to retain
fluids. Retention of fluids may lead to additional complications. Other
medications cause a loss of fluids. To help us monitor fluid balance,
we ask you to keep track of all fluids, in addition to the food, taken
in. We will also measure and test all of your child's output. Please do
not flush or discard any urine, stool or vomit. We routinely test output
for the presence of blood. We also test urine for the presence of protein
and sugar.
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