Bone Marrow Transplantation can be an exciting time as well as a stressful time for patients and their families.A bone marrow transplant brings great hope as well as great fear.When a family decides to undergo a bone marrow transplant they must prepare themselves for this upcoming event.Knowledge and understanding are key concepts for preparation.Parental preparation must come first.Parents need to have proficient knowledge about this treatment along with confidence and trust in their decision.The family must be able to make educated decisions related to the treatment.
Children pick up on subtle cues and can often read their parents gestures.Although members of the health care team can assist in preparing a child for transplant, there is nothing as powerful or comforting as parental communication.
Most children come to transplant having had previous hospitalizations and treatment.Build on your child's existing knowledge of his/hers illness.Most children do best with small amounts of honest concrete information.Parents and members of the health care team must remember to use language that is age appropriate to the child.The child must feel that the topic of transplantation is always open for discussion.
Many families find is helpful to meet with another family who has been through a bone marrow transplant.Families can then form networks of support for each other.
The family and child should meet with the transplant team and tour the transplant unit.Take steps to familiarize them as much as possible with the new environment and routine.Most children do best when they know what to expect.
It is important to bring items from home and place them in their hospital room.This will help comfort the child.Take steps to keep the surroundings and routine like home as much as possible.
Contact community resources, such as Cancer Care and Leukemia Society, they can help with additional educational materials and resources.Look on the internet or go to your local library to get information.Knowledge is power and can make your transplant experience a better one.
Transplant is a stressful time for all involved.Take care of yourself, take time for yourself and listen to yourself.Spend time with your spouse, extended family and friends.They will be your support system and will help get you through this stressful time.
Hospital social workers will be able to provide you with counseling, support
groups as well as financial assistance. You do not have to go through this alone,
ask for help and support. This is what your health care team is there for.
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