As with any chronic illness, epilepsy increases the family stress
level. Parents typically experience both guilt and anxiety. Since
children with epilepsy have an increased risk of learning and
behavior problems, their families may need to deal with these special
needs as well. Sometimes parents overprotect or indulge the child
with epilepsy. Siblings may feel a lack of attention and extra
responsibility.
Services that can help families cope with these challenges include
respite care,
epilepsy support groups, online information sources such the
Epilepsy Foundation of America web
site, and sibling
workshops. Families may find that care providers can be a useful
resource for developing realistic expectations for a child with
seizures. Providers can also guide families to useful resources.
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